Ataxia UK is a charity very close to our hearts after our daughter Millie was diagnosed with Friedreich Ataxia in Feb 2010. It is a very rare genetic life shortening disorder of which at present there is no cure .
Millie has been keeping a blog of daily life living with Ataxia, it also has information, links, fundraising events, and of course just a little of her Love for Justin Bieber and Ronan Parke. You can read all about Millie and learn about her condition on her website http://milliemaesworld.co.uk/millie/.
You can read about the wonderful work Ataxia UK do, on their website http://www.ataxia.org.uk/ .
We are just establishing ourselves as a business with plans to donate 50% of all profits to Ataxia UK in the future to help find a cure for our daughter Millie and other Ataxia sufferers worldwide.
Mille is currently spearheading Atakia UK's new campaign 2020Vision-aiming for a cure.
You can read all about this and watch a short video here http://milliemaesworld.co.uk/millie/2020vision-aiming-for-a-cure-ataxia/